Monday, March 21, 2011

Old Skills To Re-learn

Just days after my stroke I noticed something new and disturbing. I couldn't read. This didn't seem to be a cognition problem as I could understand words on a page.  What I couldn't do was focus and follow printed words for more than two or three lines. My eyes would jump around and refused to stay on the page. I was thinking this might be an eye problem, or maybe it was a brain or nerve problem, which had little to do with my eyes. Either way I was scared. Here I was an avid reader who previously could and would get lost in a book for countless hours. Now I was in the hospital with nothing but time on my hands, and I just could not read.

When I mentioned my condition to doctors, nurses, or therapists, no one seemed to have any knowledge about this particular symptom. That caused the fear to grow.  At that early point in my recovery, I could more easily imagine a lifetime of challenges with walking naturally and maybe not using my right hand normally.  I simply could not imagine a life without reading.

Several months later, I stumbled upon Dean's stroke recovery blog.  I started very slowly and clumsily reading the many entries that interested me. I wrote to Dean to tell him how excited I was that he was touching on some of my own issues. I told him it would be some time before I finished reading all the entries because I could only read a very little bit of content without resting. Dean responded by telling me that as a result of his stroke, he too had a period of not being able to read. In Dean's case the symptom manifested almost exactly as it had for me. He continued on, telling me that he now reads for hours at a time!

As a stroke survivor himself, Dean validated the "reality" of my condition, compared it with his very similar experience, and let me know that it was possible to get past this hurdle. In that moment, I gained faith that I could do the same. I started reading an excellent book on stroke recovery, and for the first time in over six months, I read for more than one hour! No question, the single greatest moment so far in my recovery!

To better, even more successful days for us all,

Toni

Friday, March 11, 2011

Welcome to my stroke recovery blog!

Let me introduce myself.  My name is Toni and in July of 2010 I had a stroke. At 57 years old it was quite the surprise to find myself hospitalized with something so serious.

For most of these last seven months, information about my stroke and recovery was pretty scant. I had a lot of symptoms that were very frightening, and no one knew much about them. Then, a few weeks ago while on the Internet, I happened upon a stroke survivor's blog. Contained in his daily entries, the author, my new friend Dean, provided (and continues to provide) shared circumstances and issues that were informational and even more important, comforting.  It was like heaven opened up and angels were singing :-)  I urge you to visit his blog where I feel certain you will find a wonderful source for your own recovery. His blog is called Dean's stroke musings, and you can find it at http://oc1dean.blogspot.com/

As for me... my purpose in blogging is to share my own experiences and ideas about healing. My most heartfelt desire is that you all come and share your comments, questions, and personal experiences. The most important thing I've learned so far is that this journey of healing does not come with a map or even a sanctioned guide. Though each one of them may be well educated and well-intentioned, no single doctor or therapist will be able to provide you with all the information and direction you will require.  You should know that your journey of stroke recovery, or that of your friend or loved one, will be mostly self-directed.  I would like us to take this trip together. Let's learn new things, try out the best ones, then come together and share our experiences.  As a group, we are certainly stronger and traveling together we definitely have the potential to reach that place of wellness.

I look forward to traveling with you all,

Toni